Though I can’t speak for everyone who has suffered spinal cord injury, my experience had destabilized every aspect of my life to the point where I questioned who I was. Delving into memories was one way to ground myself, but at the time more recent memories were all too painful reminders of what I had lost.

Another strategy which I gravitated towards intuitively was to create a narrative. I began thinking about how to put such an overwhelming experience into words as if it was a book or screenplay. My goal wasn’t to actually create media but to entertain myself during long sleepless nights, though some of these musings were memorized and included in these posts.

Creating a narrative also helped integrate pre and post-crash lives (which at times still seems as disconnected and dissociated as my mind from my body). Part of it involved making sense of the senseless, a struggle which also draws people towards religion and philosophy in times of crisis. I’ve had an interest in both for a long time, sparked in part by cannabis and entheogen experimentation throughout my early to mid 20s. However, the perspective provided by spinal cord injury opened up a deeper emotional and experiential appreciation.

Oddly, qualities which one might think would prepare me for my fate also presented unique challenges. For example, pre-injury I often felt I was “living in my head”, preoccupied by fictional, theoretical, and speculative topics. Much of my waking hours are now focused on pragmatic matters like correspondences and research related to health, bills, insurance, social security, etc. which is still in the mind but in a way not previously accustomed to. This is partly why my writing been more sporadic lately.

Similarly, pre-injury I was often immersed in multimedia of a wide variety of genres. While I fortunately still have access to electronic media, my interest in physical media has significantly decreased. I thought about my library of rare and obscure books collected over many years I was once so proud of. Not being able to read them without help nor able to enjoy the tactile pleasure of holding them, I lost interest in owning the books. I could only hope to get help selling them on Ebay or giving them to people who might value them as I once did.

I was and still am somewhat of a loner, though I can and do reach out to people when I want to via internet. Having “alone time” has always been important and I still get enough of it, but what’s different now is that activities that were previously private (ie. showers, bathroom, toothbrushing, etc.) are now shared with a caregiver out of necessity.

Prior to my injury I was fortunate to have never needed to be hospitalized for anything major other than a minor stroke in 2019 (which I completely recovered from within a month). I had long been semi-health-conscious, eating healthy most of the time and structuring my life to stay somewhat fit without having to go to the gym. My goal used to be longevity with a focus on quality of life. Now my goal is pain management, preventing my health from deteriorating, and regaining as much health as I once had as possible.

Even while relatively healthy, for some reason for much of my life I just didn’t feel comfortable in my skin. It seems humorous thinking back on it now because I’d do anything to feel as comfortable in my skin as anytime before the crash. Especially right after it happened, my body never felt so alien, hostile, and confining.